Create a letter of intent
Think of a letter of intent as a handbook that guides your support team on how to provide the best care for your loved one. When creating your letter of intent, no standard set of requirements applies. You can start with basic information and add more over time. You may also find it beneficial to involve other caregivers while creating or reviewing your letter of intent to get other points of view. Note that a letter of intent is not legally binding, unless it includes specific language that the parties are legally bound to the terms.
To help you get started, consider including some of these:
Daily care
Medicine, nutrition, behavior management, daily routine, tips and tricks, community-based activities (school, job, day program, etc.).
General overview
Family information and preferences, medical history and diagnosis, benefits and insurance information, future plans and wishes.
Caring community
Provide name and contact information for their medical team, case managers, social workers, future care team, friends and family, etc.